For Parents/Family Members



As a parent/family member/friend of someone with MRKH, you need to know that your support is needed all the way through diagnosis and beyond.

I am going to offer some of my thoughts based on my own experience and conversations with other girls.

If you have had other experiences, please drop me a line at mrkhlife@gmail.com or make a comment in the guestbook.  I will incorporate your comments (with your name if you leave it).
  • Specifically for Mom:  IT'S NOT YOUR FAULT!  Our condition is congenital, caused during development and it was a development that you had no control over.  Please do not feel that you could have done something to change this.
  • Dad: It's hard to talk about this with you, but what we really need is your love and support.  Most average girls will find this is more than adequate to help cope.
  • To everyone:  We may be sensitive to comments from anyone who says "When you have kids...." or when incessantly talk about your future family/grandchildren from your other kids/family members. 
  • We may question our own sexuality and that's okay.  It's not uncommon for us to be lesbians, and going through testing to assure the doctor of our chromosomes is a bit trying.
  • Before you share our condition with anyone else, please make sure that your loved one wants that said.  It can be painful to hear what others know that you didn't say.
  • There is a mourning time when a girl is diagnosed, and in my experience is recurring, for the life you didn't choose, and the options you never had taken at birth.

1 comment:

  1. Thank you for sharing this information! If I'm not going to share this diagnosis with anyone I would like to know who I can talk to about this to support me in helping my daughters.

    ReplyDelete