So I finally made it to the gynecologist again. It was my first time since 2004.
My excuses for not going earlier:
1. I had to change my doctors because of the health plan I had, so I carefully selected a doctor. I'm lucky because of the vast information I have about the providers since I work in healthcare. Even with that, its still hard to learn who knows what about MRKH.
2. I was in grad school so I had a hard time getting an appointment at my specialist's office because of his availability and my short visits home.
3. I had anxiety about a new gynecologist
4. I was not really sexually active (some of the time)
5. I had serious anxiety about a new gynecologist
6. I was tired of explaining the condition to new doctors
7. I had serious anxiety about a new gynecologist
I think you get the idea.
I felt inspired when I scheduled my appointment. My health plan sends out reminders for various health checks so in order to get rid of it (and be a good patient who 'cares' about my health), I scheduled it.
And I also had a boyfriend at the time. I was finally confident again that my made vagina was still working.
I knew that after that appointment, I could meet with him and he would just hold me. I knew emotionally it would be a hard day.
But I didn't have a boyfriend to do that by the time the appointment came.
I arrived on time to the appointment and checked in at the front counter. I sat down and launched my computer and started working, only that I was called back into the room after I got my computer booted up. I went back into the room and the MA started asking me questions about my last period and sexual activity. I told her that I had a congenital condition called mullerian agenesis. She didn't know what that was.
She asked me to change into the gown and wait for the doctor.
I didn't have to wait very long when the doctor arrived. She introduced herself, Ann, and she asked me about the congenital condition that I had. I was so thankful and relieved to find out that she studied under the specialist that I was not able to get an appointment with anymore. I wanted to sing into the heavens. I just about started crying when I told her that I was thankful that she knew about MRKH because I am so tired of explaining it. She understood. When she asked me about sexual activity, I just about cried as well because that has been such a difficult thing for me to just relax through. With my few partners, I always worry about everything working.
I was a bit relieved (and also kind of sad in a weird way) when she told me that I would never have to have a pap smear because I don't have a cervix. She did a brief digital exam and commented to me that it is amazing how far the vagina has come from nothing. She asked me during the visit if what she did hurt me in any way. I told her no, but that I was used to pain down there. After I said that, it struck me. I should not be used to pain down there. I think most women are used to pleasure in the genital area. Maybe I am wrong.
The visit itself went remarkably well. I felt like an idiot afterward for the emotions the whole thing brought about. I reassure myself that I am human and it is the way it is.
The rest of the weekend, I felt a bit scarred. I have not gotten back into the book about sex, and the thought of sex right now is not overly appealing. I'm getting better though, feeling more like me every day.
I don't have to go back to the gynecologist for three more years.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Next time: I'll write about the spot my mom commented on...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
www.mrkhlife.com
I was a bit relieved (and also kind of sad in a weird way) when she told me that I would never have to have a pap smear because I don't have a cervix. She did a brief digital exam and commented to me that it is amazing how far the vagina has come from nothing.
ReplyDeleteu said this, does it means u have vagina? u dont have uterus n cervix??? n sill have vagina? is it possible, as my gynecologist dont believe on my MRI report that i dunt have uterus but have vagina, she said its not possible.
Hi,
DeleteYes, I have a vagina that I made from dilating. The vagina opens up at the point of the cervix into the uterus. I don't have a uterus and the rest of the system up there (ovaries, fallopian tubes) is underdeveloped and not attaching to anything. I think you can have a vagina and no uterus naturally. Take what your doctor says with a grain of salt especially if they are not a specialist. I had a cruddy gynecologist who didn't even know what she was looking at and a nurse practitioner who had a general idea. If your doctor is not someone who knows MRKH, and you are in diagnosis phase, I would think hard about finding someone who knows the condition. It's too hard in the beginning to have to teach new doctors about it. Find a medical school hospital reproductive center and get a gynecological specialist or call around and ask doctors if they have treated it. Let me know if you have any questions...
I know exactly how you feel. I'm actually from Portland, OR too, and I was diagnosed with MRKH in elementary school. I started dilation last year at 17 and it's been a difficult journey. I get so sick of explaining it to people, to doctors, friends, boyfriends, family members... It's comforting to know that I'm not the only one going through this. Not even the only Portlander! Hang in there. Everyone is dealt a different hand in life; this is ours and having it doesn't mean we can't lead rich and fulfilling lives.
ReplyDeleteThanks for your comments. It's such a strange condition to discuss with others. We may be in each other's presence but never know that we have this similarity (not a typical table topic!). If you have any questions about the dilation, doctors, and whatnot in the area let me know. :)
ReplyDeleteWell a good piece of knowledge!
ReplyDeleteAnd now it’s only 1 and a half years until you have to come back to your gynecologist! How time flies, right? Your anxiety over having a new gynecologist is completely understandable. Whether you have an existing condition or not, it’s uneasy having a stranger inspect your private parts and then have a conversation about it afterwards, even if he or she is a medical professional.
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